Read Ebba's Story

KIDS MATER TOO. Wait. Did we misspell the word "matter"? This play on words is intentional and is a reference to the meninges of the brain (dura mater, arachnoid mater, and pia mater). More poignantly, the missing "t" symbolizes the time children lose when they are diagnosed with diffuse midline glioma (DMG). DMG is a devastating pediatric brain cancer with a 0% survival rate. Children affected by it retain full awareness of the world around them, but the tumor robs them of all we take for granted: the ability to walk, talk, see, hear, and breathe. The average age of diagnosis is 5-9 years, and children live an average of only 9 months after their diagnosis. The KIDS MATER TOO Foundation is dedicated to funding the most promising research projects for pediatric DMG. 

​

​

​

Pediatric cancer research only receives 4% of the national cancer research budget each year. The rest is allotted to adult cancer research. This affects pediatric cancers across the board, but it's particularly crippling for more rare cancers like DMG. Our name, KIDS MATER TOO, refers to this lack of funding. Kids deserve rigorous research, better treatments, and the chance to grow up. Pediatric cancer is underfunded because legislators view kids as statistics. At KIDS MATER TOO, we recognize that kids are not numbers; they are one of a kind. Of the 8 billion people in the world, there will only ever be one of your child.